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Challenges for patients with ALL undergoing long-term treatment
Know ALL Ambassador Panel
November 6, 2023
During the recent ambassador meeting, co-chair and patient Jaymz Goodman led a discussion on the challenges faced by patients with ALL undergoing long-term treatment.
Firstly, Goodman outlined key points, including joint issues and avascular necrosis for teenagers, as well as impacts on patient bone density. Next, challenges in treatment adherence and maintenance were discussed, including some strategies to improve adherence. Psychological and emotional challenges, such as returning to work and school after treatment, were also considered a key challenge faced by patients with ALL; the significance of ending treatment was highlighted as a critical time when support is needed to help with social and lifestyle changes.
