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What does survivorship mean to you, and what advice would you give someone just starting their journey with ALL?
Jaymz Goodman
September 3, 2025
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For World ALL Day 2025, Know ALL spoke to Jaymz Goodman, Chair of Know ALL and previously a patient with acute lymphoblastic leukemia. We asked, What does survivorship mean to you, and what advice would you give someone just starting their journey with acute lymphoblastic leukemia?
During this interview, Jaymz reflected on survivorship, describing it clinically as being disease free and with undetectable disease by sensitive tests (measurable residual disease negative) for 5 years after treatment, and personally as the process of learning to live again after a life-changing illness. The discussion included redefining “normal” following treatment, adapting to long-term side effects, and discovering new ways to find enjoyment in life. The emotional impact of cancer was highlighted, along with the importance of protecting mental health, asking questions about treatment, and preparing for possible physical changes. Advice for those beginning their journey included staying informed, engaging in activities that give you joy, seeking support early, and embracing opportunities, with the understanding that life after cancer can offer new perspectives and purpose.
This educational resource is independently supported by Amgen. All content was developed by SES in collaboration with an expert ambassador group. Funders were allowed no influence on the content of this resource.
